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Six weeks already? Wow!  This was a tough week – between Brooke’s EEG and a storm that finally delivered what the weathermen had promised, it has been a tiring week.  That said, there were a couple of really good runs – Thursday’s 10-miler proved to be one of my best efforts of the year (the last 2.5 miles coming at a 6:44 pace) and that was preceded on Wednesday by a very zippy 6-miler that was way faster than last Sunday’s race.  Running in the middle of Nemo was an adventure to be sure, followed the next morning by an ice cold run – 9°F!  Yikes!

All in all a good week of running despite a tough week at home.

Hope you all got your miles in this week!

-Luau

Week 6:
February 05 6.0 miles 52:18 8:43 pace aHR 123
February 06 6.0 miles 42:03 7:00 pace aHR 149

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Day 37 – a zippy 6 where I just missed going sub-42

February 07 10.0 miles 71:11 7:09 pace aHR 147

Day 38 - Best run of the week - run on very little sleep - last 2.5 miles were at 6:44 pace!

Day 38 – Best run of the week – run on very little sleep – last 2.5 miles were at 6:44 pace!

February 08 3.0 miles 24:14 8:05 pace aHR 129

Pre-Nemo Run

Day 39 – Pre-Nemo Run

February 09 5.0 miles 45:32 9:06 pace aHR 134

Day 40 - 5 Snowmageddon Miles

Day 40 – 5 Snowmageddon Miles

February 10 2.0 miles 16:55 8:58 pace aHR 156

Day 41 - Post-Nemocalyptic Run in 9° temps

Day 41 – Post-Nemocalyptic Run in 9° temps

February 11  5.0 miles 40:00 8:00 pace aHR 135

Day 42 - 6 Weeks in the books

Day 42 – 6 Weeks in the books

Week 5 Total – 37.0 miles

#AutismStreaks Total – 207.0 miles (as measured by Garmin 610) – puts me 3 miles behind my mileage of at least 5.00 miles per day.

***

If you want to start your own #CharityStreak pick up the Charity Miles app and start raising money for your favorite charity simply by walking, running or biking:

Get the Charity Miles app:

  • Download App
  • Download App

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The temperature on my phone read 18°F.

And it was snowing.

And it was a little breezy.

Just awesome… I thought.

Am I really gonna do this?

No, I wasn’t asking myself if I was going to run – I’ve run RaceMenu’s Super Sunday race every year since 2009.  It’s has a special place in my heart having been 1.) my very first road race and the following year being 2.) the best performance I have ever had in a road race.

No, I was definitely running.  The question was whether I was going to be crazy enough to take off the singlet and go bare-chested with #AutismStreaks written on my chest.

I had been pretty certain I was doing this – that is until Friday afternoon when I came down with a debilitating head and chest cold.  I was so out of it Friday night that I had to skip much anticipated dinner plans with family friends.  After a cocktail of homeopathic and OTC remedies, I had pretty much recovered by Saturday morning, but I was still feeling the lingering effects.

As I got myself dressed to head out, I took my singlet in my hand.  I thought about putting it in my backpack, but instead dropped it on the floor – my decision was made.  I then woke up Jess, handed her a sharpie and put her to work.

***

My original thought was to stay completely clothed until the starting gun.  Unfortunately, if I wanted to be able to check my stuff, I was going to have to do it a good 15 – 20 minutes beforehand.  As I stripped down to my running shorts I got a lot of  “Oh my God!”‘s.

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It would be the most repeated statement of the day.  At 20°F, I knew I could be pretty much viewed only as absolutely crazy.  I moved into the tent to wait until the last minute to join the starting crowd.   While there I got plenty of “way to go”‘s and “nicely done”‘s.  One woman even asked if she could take a picture with me – who was I to say no?

Finally, with what I thought was just minutes to go, I made my way with my buddy JB and his friend Ed to the starting line.  We moved to the back of the crowd.  My reasoning was that I wanted as many people as possible to see that I had “sponsored by Charity Miles” across my back –

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– hopefully at least a few of the approximately 1300 people I would pass along the way would get curious, google “Charity Miles” and start raising money on their own for their favorite charities.  With the wind blowing and the snow falling, my body began to shiver.  Despite having on a hat and gloves, I was standing still and I was cold.

All I needed was a starting gun, but the opening ceremonies dragged on and on – truth be told, I’m sure they weren’t any longer than any other race, but when you’re standing in 20° snowy, windy weather, half-naked, time slows down big time.

Finally the gun went off.  It took us nearly a minute to get to the starting line.

As we weaved our way through the crowd, my nakedness paid off immediately.  Every small pack of people I passed noticed “the naked runner” and commented on the writing – along with the “Oh My God!”‘s I got plenty of “GO Charity Miles!”‘s.

Awesome! I genuinely thought!

Fighting the crowds, our first mile was the slowest, coming in at a leisurely 8:16.  By the time we hit mile 1, my legs were warming up.  As the packs thinned, we picked up our pace covering the second mile in 7:35.  It’s funny how being cold can motivate one to run faster.  As much as I was warming up, I kept thinking about the fact that I was still not fully recovered from being sick on Friday.  My upper chest began to tighten.  Now under normal circumstances, that would be a signal for me to slow it down, but dammit, I was cold and I wanted some of that Oatmeal Stout I had been eyeing before the race.  JB asked how I was doing.  Okay…I think.  Hurtin’ a little. He cracked the whip and said let’s turn it up a little!

So we did.  Mile three came in at 7:08.

The Super Sunday 5 is two races.  There is the 5-Miler which we were running, but there is also the 5K Bailout, where you can bail out at 5K and then take a bus back to the start.  I have to admit, just briefly, I had a moment of wanting to bail out.  My chest was burning from the cold air.  But as soon as the thought was in my head, it was banished.  I was continuing to pass people along the way at a steady clip (an advantage of starting at the very rear of 1500 people) and the steady stream of comments drove me on.  JB and I once again picked up the pace – mile four got cover in 6:48.

I knew that the pace at which we started the race wouldn’t allow me to approach last year’s finishing time, but with one mile to go we decided to empty the tanks just for fun.  JB and I went back and forth.  On the second to last turn we were in a dead run and he shouted, next turn we sprint to the finish.  All I could think was I thought we WERE sprinting.

But he was right – we made the final turn for home and we both found one more gear.

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#AutismStreaks streaking toward the finish line

There was a young kid maybe 15 yards ahead of us.  We started to close on him rapidly.  I was sure we would catch him – that is until someone along the sideline warned him and he too found one last gear.  We continued to close on him but ran out of real estate.  I think if we had had another 20 – 30 yards we would have had him.  The last mile was covered in 6:29 – according to the Garmin we covered the last 150 yards at 4:49 pace.

36:28.  183rd place out of  over 1500 runner, 15th out of 72 runners ages 40 – 45.  Not bad.  I have to admit that part of me had been looking to go sub-35, but considering the condition I was in, I wasn’t complaining.  JB and I made our way to the tent and more importantly to the beer.

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I highly recommend Mayflower Oatmeal Stout as a post-run recovery drink!

After chatting with some runners and cooling down (yes, I was actually warm when I finished), I ran into some more friends, taking the opportunity to snap a shot with twitter pal and fellow blogger @kissing_frogs before heading home.

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photo op with @kissing_frogs

Hopefully, somewhere out there this week, somebody from that race has googled and download the Charity Miles app and is out there running, raising money for their favorite charity.

Maybe it’s you?

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I thought the slightly milder weather this past week would bring a few more miles, but sometimes life doesn’t play out as planned. It didn’t help that I came down with something on Friday, cutting my planned Friday and Saturday runs short. Despite my head and chest cold, I did get to run one of my favorite races of the year – the Super Sunday 5-Miler put on by RaceMenu. It’s hard to go wrong when finishers are greeted by FIVE different brewers of beer, each presenting a variety of their brews. A race report is on its way.

I hope everyone got some miles in this week!

-Luau

Week 5:
January 29 5.0 miles 36:20 7:16 pace aHR 151 (surpassed 150 miles YTD)
January 30 5.0 miles 42:43 8:32 pace aHR 132
January 31  1.0 miles 09:27 9:27 pace aHR 150
February 01 4.0 miles 29:46 7:26 pace aHR 137
February 02 2.0 miles 15:40 7:50 pace aHR 182 (short mileage after debilitating head cold Friday night – don’t think the HR monitor was functioning properly)
February 03 5.0 miles 36:28 7:18 pace (Super Sunday 5-Miler – didn’t wear heart monitor – race recap coming)
February 04 2.0 miles 13:58 6:59 pace aHR 144
Week 5 Total – 24.0 miles

#AutismStreaks Total – 170.0 miles (as measured by Garmin 610) – puts me 5 miles behind my goal of averaging at least 5 miles a day. Hopefully I get it back this week.

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Waiting for the start of the Super Sunday 5-Miler – it was 22°F and snowing!

***

If you want to start your own #CharityStreak pick up the Charity Miles app and start raising money for your favorite charity simply by walking, running or biking:

Get the Charity Miles app:

  • Download App
  • Download App

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It was c-c-c-c-c-coooold this week.

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A lot of runs were in the low to mid teens, which I think, combined with a busy schedule limited my miles. That didn’t stop me from contemplating going out in a singlet…

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I’m not sure if it was that I’m starting to get back into running shape OR if I was just motivated to get done because I was so friggin cold, but that 5-mile run was my fastest (6:55 per mile) of the year.

After my 5-miler in 19ºF weather in a singlet and shorts - "just get me out of here!!!"

After my 5-miler in 19ºF weather in a singlet and shorts – “just get me out of here!!!”

Two days later brought an unexpectedly quick 11-miler that also happened to be my longest run of the year.

Hard to believe that #AutismStreaks is already at 28 days. Leaves me 72 days to reach Kelly, Michael, Kathie Lee and Hoda. If any of you know them, please feel free to pass my letter on to them!

Hope you are staying active!

-Luau

Week 4:
January 22 1.0 miles 08:32 8:28 pace aHR 114
January 23 5.0 miles 39:22 7:51 pace aHR 141
January 24 4.0 miles 28:56 7:14 pace aHR 141
January 25 5.0 miles 34:35 6:55 pace aHR 172
January 26 3.0 miles 25:23 8:28 pace aHR 130
January 27 11.0 miles 84:24 7:38 pace aHR 147
January 28 3.0 miles 23:24 7:48 pace aHR 139
Week 1 Total – 32.0 miles

#AutismStreaks Total – 146.0 miles (as measured by Garmin 610)

If you want to start your own #CharityStreak pick up the Charity Miles app and start raising money for your favorite charity simply by walking, running or biking:

Get the Charity Miles app:

  • Download App
  • Download App

Read Full Post »

OneWorldOneLoveOneCommunity

***

Gandhi spoke of being the change you want to see in the world.

Martin Luther King Jr said that “darkness cannot drive out darkness; Only light can do that. Hate cannot drive out hate. Only love can do that.”

Buddha spoke of the “middle way“.

The sooner we get there, the better.

 

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original

“We’re going streaking through the quad…”

 

So I’m finally embracing this streak.

Once a week I’m am going to post a summary of the runs from the previous week.  I’m using the “Streak” more than anything as a motivational tool to get me back to my love of running.  So far it has worked like a charm – every day I’ve felt that old urge to get at least some miles under my feet.

I’m even posting on dailymile again.  Anybody who has tracked their mileage in the past, knows what it means to have walked away from tracking miles to then return to it.

The great part of this streak so far has been that I want to run – that need has returned, all without an “A” race in the near future.  Sure the Vermont 50 looms over the horizon, but quite honestly that hasn’t really sunk in quite yet.

Who knows how long this streak will go.  The post that my buddy Doug put up said 100 days – I’m better than an eighth of the way there.  The coolest part of this is that every day, by using the Charity Miles App, I’m raising funds for Autism Speaks and giving a voice to autism.  Will I make it to 100?  I don’t know.  I’ve always been a proponent of rest days, but sometimes you have to weigh physical need with psychological need.  If I make it to 100, will I keep going?  We’ll cross that bridge when, and if, we get to it.

Week 1:
January 01    6.0 miles   47:40  7:57 pace    aHR 158
January 02   6.0 miles   46:07   7:41 pace    aHR 168
January 03   4.0 miles   30:04   7:31 pace   aHR 153
January 04   6.0 miles   48:16   8:02 pace   aHR 157
January 05   3.0 miles   26:13   8:44 pace   aHR 145
January 06   7.0 miles   57:24   8:12 pace   aHR 140
January 07   3.0 miles   21:18   7:06 pace   aHR 156
Week 1 Total – 35.0 miles

Week 2:
January 08   6.0 miles   49:37    8:16 pace   aHR 141
January 09   7.0 miles   63:14     9:02 pace  aHR 124
January 10    3.0 miles   21:39    7:13 pace   aHR 150
January  11  10.0 miles  1:17:39  7:45 pace   aHR 145
January 12    4.0 miles   33:00   8:15 pace   aHR 130
January 13  10.0 miles  1:21:50  8:11 pace   aHR 139
January 14    3.0 miles   28:53   9:38 pace   aHR 120
Week 2 Total – 43.0 miles

#AutismStreaks Total – 78 miles

Any experienced streakers have any words of advice?

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My daughter has autism.

And according to TIME Magazine, she is crazy.

This is the screen shot of John Ashley Cloud’s article on the DSM-V:

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click on image to link to the article

 

First item up in the article?  The redefining of autism and the possible affects of such redefinition.

***

Do I believe that Time Magazine really thinks that my little Brooke is crazy?  No.  Do I think that the author John Ashley Cloud truly believes my girl is crazy?  I’m pretty sure he doesn’t.  Do I think that he or whoever entitled his piece is a complete and utter asshole?  In the words of Sarah Palin, You Betcha!

The article in and of itself is not a bad one.  It’s fairly matter of fact in its approach.  But that title…that title!

I have nothing against the word “crazy”.  I use it all the time.  Random acts of violence?  That’s crazy!  A buddy of mine running a sub-3:00 marathon his first time out?  That’s crazy!  Preparing for the Mayan apocalypse on December 21st?  That’s crazy!  The Giants beating the Pats in the Superbowl on late 4th quarter drives?  TWICE?  That’s crazy!

Setting back years and years of hard work by those in the mental disability and disorder community with the simple stroke of a keyboard?  THAT is crazy!!!

As a society we have inched ever so slowly toward a more inclusive society.  More and more we are realizing the gift of having all people participate in our communities.  Slowly we have inched toward removing the stigma of either mental illness or disability or disorder.

Cloud’s article does nothing to change that, but the title does that and more.  We live in a headline society.  That is not a gripe, that is a fact.  Just look at this past election cycle.  So many of us get our news and information from either the headlines or from the 50 word bullet points at the beginning of an article.  The only things we WILL read are those articles we find most interesting; ones that reinforce our own ways of thinking.  That’s why a title like Redefining Crazy is awful, disrespectful and downright dangerous.

People will skim over this article and walk away thinking, wow, autistic people ARE crazy…I mean they flap their arms and run around and make strange noises. And they will hold on to that headline because that is what sticks in their head.

Now before you accuse me of joining the ranks of the PC Word Police, I want you to think about what the word “crazy” means to you.  I’m sure there was a time when it was a clinical word.  Is that how the word is used today?  Would you go up to the mother of a child with what was formerly known as Asperger’s and tell her that her son or daughter is crazy?  For those of you who know my Brooke, would you say that she is crazy?

Crazy is defined in the dictionary as:

mentally deranged; demented; insane.

I would not put my Brooke in that category, but thanks to Mr. Cloud, someone who doesn’t know her, but knows her diagnosis, might.

I hope that TIME and Cloud will change the title of his article and issue a general apology.  TIME used to be such a wonderful, even handed magazine, but lately they’ve been acting like a mud-slinging headline grabbing rag.  I called them this morning to cancel my subscription.  I hope you will consider doing the same.

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Time Machine

As a runner, I think about time – like, a lot.  How fast was that last mile?  How much time did that race take?  How much time do I have for today’s run?  What were my splits?  What did I average?

Time.  It’s on my mind all the…well…time.

But I’ve been thinking about time in a different way recently – as in, I wish I could go back in time.

We all have things we wished we had done differently when we were younger – the girl who got away; the trip we didn’t take; the job we declined.  I’ve got a bunch of them, but to be honest they are all silly and childlike save one – I wish I had been paying more attention to Brooke when she was a baby.

Now, understand, it’s not like Brooke is in a bad place right now.  Truth is, she’s been doing pretty well – her language gets more and more complex; she’s expressing how she feels; she’s getting more independent.  She even as a pair of sisters fighting over whose friend she is.  Brooke is in a pretty good place right now.  In general, she is happy.

But at the same time, I can’t help but notice the widening gap between her and her peers.  More and more her home-school communication journal mentions fewer and fewer friends she plays with.  As the girls her age have grown, I’ve seen fewer and fewer invitations to play dates – there have even been a few parents that just flat-out ignored any attempts on Brooke’s and my attempt to set something up.  And birthday parties?  Those are becoming rare as well – a natural progression to be sure; when Katie was Brooke’s age, she decided that she wanted to have smaller, more personal parties.  I get it.  But it’s still difficult to see the pictures on Facebook and the mentions of parties, knowing that she was not invited.  It’s not a “wah” moment, just an observation.

What scares me the most is the impending move to Middle School in a year and a half.  Will Brooke move on with her peers? or will she end up at a different Middle School with a special program for kids on the Spectrum?  These girls may not be calling for play dates and birthday invites, but they know her; they get her; they’re cool with her.

Would that I could go back in time to when Brooke was a baby.  Would there be anything I could have done?  Would that I had listened, really listened to Jess when she first felt something might be different.  Would Brooke be in a different place right now?

How could I have not noticed?  If I had, would she be different?  I know it’s not PC to wish the autism away, and you know, it’s not the autism per se that I would wish away – it’s the difficulties that Brooke faces every day that I wish I could change.  Brooke has autism, and no matter what I noticed or did six or seven or eight years ago wouldn’t change that – I just wonder if I had noticed earlier; if I had paid more attention; if I had gotten her the help she needed earlier…would it be different?

I wish I had a time machine so I could find out.

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So yesterday we found out the results to the biggest contest of 2012:

#teamLuau had defeated #teamBecca by a resounding 40 Charity Miles

…well, a closer look at the numbers revealed that maybe the victory was not as resounding as one might think – 604 miles to 564 miles – 51.7% to 48.3%

Hmmm…maybe not such a mandate after all.

***

And so, in the spirit of cooperation and bipartisanship, #teamLuau would like to show the winners and losers of that other contest that was held yesterday how it is done.

Instead of gloating about our victory and making gorilla noises at #teamBecca, #teamLuau would like to offer to split the miles Becca has to run in a gorilla suit – we will take on 20 of those miles.  Obviously logistics (how do we transport the gorilla suit? when? where?) have to be worked out, but one way or the other, we will work together and get this thing done, because in the end, it was never about #teamLuau OR #teamBecca.

It was about you.

It was about you and those whom you love; it was about the children and adults who struggle with autism on a daily basis; it was about doing our small part in making the world a better, more hospitable place for anyone who has ever felt different from others.

Hopefully OUR cooperation can show those guys in Washington that together is always stronger than divided.

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Mr. Gino

So I swear this isn’t turning into a ballet blog, really I promise.  I will be getting back to the running and the fitness and the healthful life choices at some point, but I have to write about this guy – Mr. Gino.

As I wrote about earlier, we finally found a dance school that had the tools and the will to adapt a class for kids like my little Brooke.  You can read that post —>HERE<—.  Is the class a traditional ballet class with leotards, tights and hair up in a bun?  No.  The class is a mix of music and movement and expression that allow kids like Brooke to participate fully.  Midway through watching today’s class, I tweeted this:

Dear @BostonBallet adaptive class – I LOVE seeing my baby SO engaged in a dance class setting! THANK YOU!!! pic.twitter.com/0ZUb6FW0

(Click on the pic.twitter link to see the picture)

From the moment the class starts to the end, a full 60 minutes later, Mr. Gino has the kids in the class moving.  What had me absolutely amazed with Mr. Gino was that he got everybody, EVERYBODY to participate in the various activities the class went through.  This is a dance class populated solely with kids on the Autism Spectrum.  These are kids that, in a traditional classroom, can have a lot of difficulty participating.  But Mr. Gino got every, single one of them to participate fully.  At one point they had a dance circle where the kids formed a circle and one by one each child would go into the circle and do a 10 second dance riff of their choice while the rest of the group would cheer.  I was not convinced that every kid would go in, but sure enough, Mr. Gino got them all to not only get in and dance in their own special way, he got them to do it, one by one, in order and most importantly, with a smile.

This is a man with a special gift.  Thank you Mr. Gino for making Saturday mornings for my baby such a wonderful experience.

Brooke hugging Mr. Gino…and she doesn’t like hugging anybody but a very, select few.

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