Last week I wrote —>this<— in response to a self-proclaimed crime analyst/profiler/blogger who attacked the family of Mikaela Lynch by blaming the parents for her death. In a nutshell, this was the post: the First Amendment protects your right to be an asshole…that doesn’t mean the First Amendment tells you to BE an asshole. The concept being that although the First Amendment protects your right to free speech, this picture of Moses bringing down the Two Commandments reminds you to temper that free speech with a little compassion.
I was pretty proud of the post, and I got some positive feedback from many parents in the autism community.
Boy, it didn’t take some of them very long to turn the tables right around and be just as vicious, just as cruel, just as mean and cliquey as that self-proclaimed crime analyst who had attacked them just days earlier. Had they turned their emotional anger toward that self-proclaimed crime analyst/profiler/blogger, I would have chalked it up as karma, but these parents have chosen to attack one of their own. Well, that’s not quite right. They have chosen to silence nearly half, yes HALF of the autism community. Which half you may ask? The half that IS autistic. Ironic, isn’t it? The reason? Because the autistic people they are attacking aren’t parents. In these parents’ views, an autistic person who is not the parent of an autistic child can’t possibly know anything about anything that has to do with caring for an autistic person.
What?
One of their arguments compares autistics trying to give their perspective on the emotional topic of wandering to a layman giving medical advice on how to cure cancer. One blogger literally told autistics to, and I quote, “Shut Up!”
Um, really?
So, hmm, let’s use this comparison: a government body of over 500 hundred mostly white, grumpy old men dictating what half of the population (women) can and cannot do with their bodies when it comes to the emotional topic of reproductive rights. Guess what – those moms are NOT the women in this comparison, they are the grumpy, white, old men. Why? Because, going by their argument, how can they possibly know anything about anything in regard to bringing forth bills and passing laws and dealing with lobbyists – they can’t so STFU! Oh, you’ve studied the law? Well, you’re not and never have been a member of Congress, so STFU! Oh, you’ve worked for your local government? That’s cute. You’re not a member of Congress, so STFU!
But that’s stupid, isn’t it? I mean, really. How is it okay to tell the very population you are trying to protect to shut up? Again, kind of repeating what I said last week, if you want to tell people to shut up, I suppose it IS you First Amendment right…but you would be in direct opposition to God’s Two Commandments – 1. Be Cool and most important in my opinion 2. Don’t Be an Asshole. Being mean and cliquey really just reveals that you’re mean and cliquey…and that you’ve broken the 2nd Commandment and are an asshole.
When it comes to the topic of wandering, I agree that we must find a way to make sure our kids are protected, but we must be willing to listen to autistic people, if for nothing else possibly discovering that there might be a reason for some, and I stress the word SOME, of the wandering. This video, made by an autistic person, is not the answer, but it does give perspective, another way to look at the sitation.
What surprises me is that people got upset at this video. In hearing some of the responses, however, I came to understand that they cherry picked what they heard, choosing not to hear the rest.
Sound very Congress-like, no?
Yes, it touches on a subject that most parents’ of autistics cringe at – abuse – but he goes on to say that particular situation is in a very small minority. As Jess asked her readers yesterday, take a moment to listen, really listen! And then I ask you to temper your use of the First Amendment with the First and Second Commandments.
If you don’t want people like Chelsea Hoffman being an asshole to you and your community, then don’t be an asshole to the very community you are trying to protect.
And don’t be a grumpy, old white Congressman who thinks he knows it all.
And remember, just because the First Amendment protects your the right to be an asshole…it doesn’t mean you HAVE to be an asshole.
Shoes
Posted in Uncategorized, tagged Bloggers, mikaela lynch, pay by the click, pay by the comment, shoes on May 17, 2013| 5 Comments »
Whether we care to admit it, we have all done it – rolled our eyes as we’ve listened to someone go on about how difficult they have it. I know I have. Whether it’s food allergies or diabetes or behavioral issues, I’ve acted as if intently listening, truly concerned about what the speaker or speaker’s child is going through, all the while rolling my eyes internally thinking, really? you’re complaining about that? Oh. My. GOD! Will you shut up with your non-problem?
I
don’ttry not to do that anymore. I learned quite a while ago that for each of us, our issues are just that – ours. They are personal, they are deep, and they can cause much distress in our lives. I once rolled my eyes at food allergies – but you know what? Food allergies can kill. I used to roll my eyes at diabetes, self induced in particular – but you know what? Diabetes can kill.Unless you are living it (or have lived it) you can’t fully understand it. Even within the autism community, there are such a wide range of experiences that are as unique from individual to individual as diabetes is to food allergies. I cannot begin to truly imagine what it would be like to have to wipe feces off the wall on a regular basis. I haven’t lived it, so I can’t/shouldn’t judge a parent in that situation for some actions that may seem a little “different” to me.
Which brings me to the awful events surrounding Mikaela Lynch. Earlier this week, 9 year old Mikaela, who was more impacted by autism than my Brooke, slipped out of her parent’s care. Sadly, a couple of days ago she was found in a creek, deceased. Regardless of whether one was part of the autism community or not, I would have assumed that everyone would mourn the loss of this young girl and if nothing else, have thoughts of condolences to her parents and family.
But that was not the case.
To my horror, there were some who decided that maybe less than 24 hours after Mikaela’s body had been found, it would be a good idea to ask if blame should be laid on the parents. Now, I am not going to name anyone, in part because some bloggers get paid by the number of times people click on to their page and even more with every comment that is left on their posts. The more clicks and the more comments, the more they get paid (I wonder what kind of writing such writers are inspired to produce?).
It became apparent that one particular person throwing blame at the parents was not a parent. That person, when called on that fact, rightfully asked if the market on criticizing parents was cornered by those who are parents. It’s true, non-parents have just as much of a right to criticize a parent’s action as anybody else…
BUT
…but that person, as any of us who would judge someone else, should have at least made an intellectual attempt to walk in their target’s shoes.
As much as we over share our lives via social media (and believe me, I know I am guilty in the first degree) how well do we truly know each other? Not nearly as well as we think.
Were Mikaela’s parents negligent? I can’t answer that because I didn’t know Mikaela, her parents or her 8 year old brother, who was apparently keeping an eye on her. YOUR first reaction may be what? an 8 year was supervising a 9 year old autistic girl? Horrors! but then you would fail to recognize that you were looking at the situation through the lens of your life or your personal experience and knowledge of 8 year olds. I have known a few 8 year old kids who I would have trusted to keep an eye on things while I went inside to do dishes, sweep the floor or whatever it is that Mikaela’s parents were doing inside their house. NT (neuro-typical) siblings are unfairly
askedforced to grow and mature quickly. Unless you really know them, how can you really judge them?I try not to jump to judgement on a daily basis and I fail at it over and over again on a daily basis (see Amy’s Baking Company meltdown on Kitchen Nightmares – it’s really hard not to judge) but I try to remind myself every time to at least imagine walking in someone else’s shoes for a bit before dropping the hammer. I hope people will do that before snapping to judgement on Mikaela’s family, or anyone else’s for that matter.
IN ADDITION:
It would appear that there are actual specifics to the timeline that one certain mean-spirited blogger chose to ignore. The blogger chose to write that the parents didn’t notice Mikaela was missing for 30 minutes and that they were inside the house the entire time. Sensationalist at best, mean-spirited and money driven (clicks and comments – there’s a reason why this blogger responds to comments with insults; to get a rise out of commenters who will then leave more comments, putting more money in her pocket) more likely, this blogger painted the worst possible picture without any real facts. Here is the timeline and what the mother was doing according to to the National Autism Association –
While her two children played on a trampoline on Mother’s Day, Mikalea’s mother was in the back of their vacation home putting screens on vent holes because the wasps were building hives in them. During this time, a bee scared Mikaela’s brother, he ran and Mikaela disappeared. Based on video surveillance and time stamp, Mikaela’s parents were two minutes behind her. Thirteen minutes into frantically searching for their daughter, they called the police.
Please stick to reputable news sources when forming an opinion – the examiner.com, though generally entertaining, is not one of them.
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