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Leading From the Rear

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Dear Boston 13.1 Team Up with Autism Speaks Runners,

I am truly sorry.  I have not kept up my end of the bargain we made last Spring.  I was supposed to lead you through your training, inspire you to run long, ready you for the 13.1 miles you will conquer next month.  I have done none of those things.  Unfortunately, lung issues have put me on the shelf for the last month and I have not been able to lead long runs, any runs really, at all.  It has been 28 days since I last laced up; and truth be told, the week leading up to that last run was labored at best.

No, I have been neither a good leader nor team captain, and for that I am truly sorry.

I hope you have been training.  I hope you have been running at least three time a week with one long run on the weekends (you should shoot for 10 slow miles this weekend).  I hope you’re on target with your fund raising goals.

I’ve got one last challenge for you.  I know it’s a lot to ask, particularly as I have been an absent leader, but I ask you nonetheless.  As of this coming Sunday, there will be three weeks until Boston 13.1.  I want you to convince a friend to come join you in our little jaunt by the sea.  It’s okay if they say they are in no shape to run 13.1 runs because you know what?  Neither am I!  But I will be there – despite the complete breakdown of my running since mid-July, the Blue Afro and I plan on being on the course with you.  I may have to walk, but I will be there – and if I can do it, so can a friend.

I can’t promise dinner with Jess (adiaryofamom) since she is not running this year, but I can promise that the team dinner the night before the race will fill you with words of inspiration and feelings of hope and promise…oh, and a chance to break bread with the Blue Afro and me.

I look forward to seeing old faces and meeting new friends on the 14th and 15th.

Sincerely and Apologetically,

Luau

PS:  If you can’t join us for Boston 13.1 but would like to contribute in some way, please consider donating to my fund raising page (link below).

—>Luau’s Fund Raising Page<—

Dear Brother…

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Dear Brother,

We are not wired for this.  Our problem solving skills do not match up well with this unexpected challenge that has been unexpectedly thrust upon us.

What do you mean it can’t be fixed? 

What do you mean there is no cure?

I know exactly how you feel.  Even though my head knows better, my heart still wants to fix it…fix her, just like I know you want to fix him.

It is what we do as men – we fix things.  If something is broken, we fix it.  If we can’t fix it, we probably know someone who knows someone who can.  Flat tire, broken hose, leaky pipe?  No problem, pass the tools.  If it’s something bigger?  Pass the phone, I know a guy…

***

Dear Brother,

This is different.  Our kids aren’t machines.  It took me some time to come to the realization that our kids aren’t broken; they are simply different.  Can that difference make life harder?  Yeah, right now it can; but difference, whether it be race, gender, orientation, height, weight or autism can do that.

But different doesn’t mean bad.

***

Dear Brother,

Don’t be afraid of labels.  It took me time to realize that when Brooke received her autism diagnosis, she was still the same girl she was before the doctor said, “autism”.  The label doesn’t change our kids dear brother.  In fact, the label empowers them…empowers us.  The label gives us a powerful tool in helping our kids get the services they need.  The label can turn resentment of strangers into compassion, helping them understand that when our kids have public meltdowns, it’s not because they are bratty or that we are bad parents, but rather because the environment has overwhelmed our kids’ capacity to cope.  The label is not about pigeon holing our kids…it’s about setting them free.

***

Dear Brother,

It takes time for us to get to the place where our kids’ mothers are.  Truthfully, we will never occupy the same space.  We are not wired the way they are.  Intellectually we will know, but a small part of our hearts will always betray us.  But that’s okay.  Just like our kids, we are different.

Autism is part of who our babies are.  Admitting that doesn’t change them.  Admitting that doesn’t hurt them.  Admitting that doesn’t mean you love your kid any less.  Admitting that doesn’t mean you will stop searching for ways to make his life easier.  In fact, admitting that will in all likelihood hasten the influx of tools that are available to you, your wife, and most importantly, your son.

***

Dear Brother,

It’s okay to feel the way you do…it is how we are wired, but ultimately, denial only hurts the one, beautiful creature we are trying to protect.

Sincerely & Respectfully,

Luau

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With the Winter Olympics a year away, there has been a lot of talk both in the media and among athletes about the new anti-gay laws that were recently passed in Russia. Just today the world’s best pole vaulter, a Russian, came out in support of those laws. Reading some of the comments on the variety of articles I read on the subject, I was struck at how strong the opinions were of Americans. Wait, no, I was not struck – disappointed may be a better word.

If it isn’t obvious from my past writings, I am a pretty Left leaning guy when it comes to social issues. I hope my Right leaning readers won’t leave me for expressing this (freedom to disagree IS one of the foundations of our country), but WTF guys???

So, two thing –

I.

What is it about gay rights that scares the common sense out of the Right? Just because we grant gay people the same rights and privileges we take for granted does not mean, in the words of one very conservative reader, that the gay lifestyle is being pushed upon us.

I will give you a real life example:

  • I am not gay.
  • I have some gay friends.
  • I married a woman.
  • I did/do not feel any pressure to go find a man and explore what it means to be gay because…I am not gay.

See how easy and un-pressured that is?

It reminds me of the religious nuts out there who don’t want their flock to be exposed to other religions because those people might choose another religion…except NOT because you can choose your religion…you can’t choose your sexuality (straight, bi, gay or somewhere on the spectrum).

If your child or spouse or sibling or parent or friend comes out of the closet after being exposed to the gay community, those gay people didn’t make your child/spouse/sibling/parent/friend gay – at most that community gave your child/spouse/sibling/parent/friend the courage to stop living a lie; and isn’t that what we all want for our loved ones? Yes, I imagine being gay is probably more difficult than being straight in this country, but isn’t living a lie worse? Would you want your loved one to live a lie forever?

And let’s not bring religion into this (but Luau the Bible says…). There are a lot of things the Bible says and unless you are living strictly by its teachings, you really have no legs to stand on in a Civil Rights argument if you are going to use the Bible as Exhibit A. Not everyone follows the Bible. Would you want to have to follow the teachings of the Koran or the Torah or the Tao Te Ching? Although I disagree with many religions that are anti-gay, I would not presume to tell those religions what they should or should not believe.

So that whole “I don’t want that lifestyle pushed on me” leads me to wonder if there is an underlying insecurity about one’s personal sexuality.

II.

Remember what happened in Germany about 75 years ago? Yeah, that. I am not a skilled enough writer to be able to put it any better than Martin Niemöller did in 1946:

First they came for the communists,
and I didn’t speak out because I wasn’t a communist.

Then they came for the socialists,
and I didn’t speak out because I wasn’t a socialist.

Then they came for the trade unionists,
and I didn’t speak out because I wasn’t a trade unionist.

Then they came for the Jews,
and I didn’t speak out because I wasn’t a Jew.

Then they came for the Catholics,
and I didn’t speak out because I wasn’t a Catholic.

Then they came for me,
and there was no one left to speak for me.

Don’t we have the common sense to understand this and how it applies to what is going on today in Russia?

***

So I ask my friends on the Social Right once again, in the most respectful way…WTF???

Basic Chemistry

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So when I wrote my Priorities blog post on Monday, I wasn’t being completely honest.  I didn’t lie mind you – I have been studying my butt off all week and will continue to do so until I get my certification.  I just wasn’t being completely honest about why #AutismStreaks was going on the shelf for a while…

It comes down to some very basic chemistry – in order to create an exothermic chemical reaction, one needs two things: a fuel and an oxidant – for endurance runners (really for any runner running over 400 meters…see?  I’m studying!) that means glucose and oxygen.  You take one of those two things away and it doesn’t matter how well trained an athlete is, s/he is going nowhere fast.

For the past several (about 3) weeks I have been having some breathing issues.  Don’t panic…my doctor doesn’t seem too worried at the moment so I’m not either.  BUT it has made running extremely difficult – toward the end of last week, even running 1 mile was an exhausting task.

More than anything I am frustrated.  I have almost always run through injuries; my general feeling being that I could usually run an injury back to health – whether it was my foot or my back or my hip or my knee, unless the pain was acute, I usually would run through injury and within a day or two that injury would be gone.  I have even used the same method with illness – whenever I would feel a cold or flu coming on, I would run; run hard to create an internal body environment that would be unpleasant for any virus that was considering setting up shop.  Again, this would usually work and I would be well within 12 hours.

This has been different.

My breathing is shallow; deep breathing takes concentrated, uncomfortable effort.

If I can’t breath, I can’t run – it’s simple chemistry.

I’m hoping my doctor’s sense of non-urgency is warranted and that this goes away as mysteriously as it appeared and I can get back to running at least semi-regularly.

Keep your fingers crossed!

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You like to run – check!

You want to help the autism community – check!

You haven’t been able to get into the incredibly popular Falmouth Road Race, like, ever! – check!

Guess what? You have an opportunity right now, today (or tomorrow) to be able to get into THIS year’s race taking place on August 11th. 

How, you may ask?
There is a little start up company called Technology For Autism Now (TAN) that secured 4 charity bibs for the race.  I will readily admit that I know very little about them other than they are creating technology that makes it easier for our kids to communicate more easily with the world around them.  They are still looking for runners but registration closes tomorrow (July 31st).

What would be required of you?
Well, you’d pay the $50 entry fee and then need to raise $200 via their Firstgiving Page by October 31st.  That’s 3 full months to raise just $200 AND you get to run Falmouth (a race I have never been able to get into!)!!!

So who do you need to contact?
First email Racemenu at support@racemenu.com to let them know you want to do it and then go to racemenu.com/falmouth to register.  There are only 4 spots available as of this posting so grab ’em now while you can.  Who knows when you’ll get another guaranteed chance to run Falmouth!

I would be running too, but it appears I’m on my way to an appearance on the PUP list.

Now go!  Click on the link!  Go run Falmouth!!!

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Priorities

Books

I’ve run a lot of miles this year. 1,035 to be exact.  It’s been a great year of running for me.  I managed to run at least a mile a day, averaging over 5.5 mile a day, for 168 straight days to start the year. I ran my first 100-miler.

But I’ve got a problem.

It’s been almost a year now that I have been studying to take the NSCA CSCS certification  test, but #AutismStreaks and training for the TARC 100 has taken time away from that.  I had originally aimed to get myself certified by late March.  I am already 4 months behind.  A barely failed practice exam has made it clear to me that I need to re-evaluate my priorities.  I need to buckle down on the books and get my head back into studying regularly.  Running had become, to a degree, an escape.  As much as I love helping others train, burning the midnight oil with my nose in the books has been easy to pass up when given the choice of going for a late night run.

I can’t give myself that choice anymore.  I need to get back to studying at least twice a day, get myself certified and then get to work.

#AutismStreaks will have to be put on hold.  Consistent running will have to be put on hold.  Regular blogging and writing will have to be put on hold.

It’s time to get my priorities straight so I can get this done.

Wish me luck.  If I’ve discovered one thing during my studies, it’s that my brain isn’t as elastic as it was 25 years ago.

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The legendary “Race Across The Sky” 100-mile Run is where it all started back in 1983. This is it. The race where legends are created and limits are tested. One hundred miles of extreme Colorado Rockies terrain — from elevations of 9,200 to 12,600 feet. You will give the mountain respect, and earn respect from all. – See more at: http://www.leadvilleraceseries.com/page/show/311976-lt-100-mile-run#sthash.mgNYu2cl.dpuf

 

I just got word that I’m running Leadville next month!!!

Well, okay, I’m not running the Leadville 100, but my hydration belt is!

Many of you know, or know of, Maddy.  She is one of the two amazing women who paced me to my finish at the TARC 100 a month ago.

Me and my pacers, Erica (center) and Maddy (right).

Me and my pacers, Erica (center) and Maddy (right).

Without them I am not sure that I would have managed to finish in the allotted 30 hours.

At some point during the final 25 miles, one of the volunteers said that I would have to return the favor to Maddy some day soon by pacing her at a 100-miler.

I laughed.

Here’s the thing.  Maddy is fast.  I mean like threatening sub-3:00 marathon fast; I mean like she won the very first 100-miler she ever entered fast.  Any pacing I would do for her would simply slow her down and cost her both time and place.  Pacing her was out of the question.  Last month however, she noticed my snazzy hydration belt (made by CamelBak but apparently discontinued).  She asked me how I liked it (I loved it) and if it was heavy (it is not).  Before acquiring one she asked if she could borrow it.  After pacing me to my finish, I would have essentially done anything for her.

Turns out she loved it too, couldn’t find one anywhere else and asked if she could use it for the Leadville 100 next month.

Who was I to say no?  Now a small part of me will be with her the entire way, keeping her hydrated, and hopefully pushing her to a strong finish and a big, shiny belt buckle!

Go get it Maddy!

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I recently read a blog post of an acquaintance of mine where the poster came clean about having gained back nearly the 100 lbs lost over the previous few years.  This was particularly hard for the blogger because the blog had become a source of inspiration for so many trying to lose weight and get fit.  What was the main reason for the weight gain?  After watching food intake and running regularly, the blogger stopped doing both.  Having reached the goal weight, the “scaffolding” was put away.

***

Recently it was suggested by some people who have a direct impact on Brooke’s education that certain support services be phased out or removed.  The argument was made that she didn’t need them anymore, evidenced by just how well she was doing; that the scaffolding was no longer necessary.

***

There are short-term projects, there are long-term projects and then there are life-long projects.  In both the short- and long-term projects, eventually, usually with some hard work, one will reach a goal, bask in the glory of achievement and then move on to the next goal.  The supports used for attaining that goal can either be passed on to others or put away for the next time they become necessary.

But then there is the lifetime-goal or maybe more appropriately, the lifestyle-goal.  I don’t mean Robin Leach’s “Lifestyles of the Rich and Famous” kind of lifestyle, I mean the “way you live your life” kind of lifestyle.  These kind of goals, if different from the way we currently live our lives, demand changes in the way we go about doing things.  They require us to buy into a system so to speak; to drink the kool-aid.

***

A few years ago I set a goal of qualifying for the Boston Marathon.  Using a variety of tools that included core work, interval training, tempo run and many others, I accomplished that.  For quite some time afterward, I did not feel the need to push myself as hard.  I still ran marathons (halves, fulls and ultras), but my approach to them changed.  I simply wanted to be able to enjoy them and spread the enjoyment of them to those around me.  I was able to put away some of those tools that I had used so intensely during BQ-training because I no longer needed them.  I will pull them out again, in the near future, as I attempt to qualify for Boston again in either 2014 or 2015.

In the meantime, I do continue to run on a regular (and currently daily) basis.  Why?  Because I know that unlike qualifying for Boston (which is a specific point in time goal), I also want to live a long, healthy life and be physically able to care for my wife and children as long as I can.  Physical fitness is NOT a “point in time” goal.  It is a lifetime goal.  Therefore that “scaffolding” that helps me build my fitness is not just scaffolding – it becomes part of the permanent structure.

***

Brooke has autism.  She will always have autism.  She will acquire skills and develop the ability to adapt over the course of time, but autism will always be a part of her.  Those skills and ability to adapt come from the scaffolding that is put in place around her.  It’s true that eventually she may not need all of the supports she receives and someday I hope that she will be able to live as independently and be as societaly productive as any of her neurotypical peers, but the tools will have to always remain present in one form or another.

I don’t see the logic in taking away support because the support is working as some administrators might suggest.

The same goes for fitness and health.  It’s one thing to join a gym, take a class, change the way you eat or whatever works for you to achieve a fitness goal – just remember what got you there.

I was not born in the United States of America.  I was born half way around the world in Nagoya, Japan.  I am half-Japanese.  I am 46.875% White – for those of you who inspired this post, that’s less than half…if you don’t understand the numbers, go back to the grade in elementary school when you stopped paying attention and try learning something for once – a lack of education is the only explanation I can come up with to explain the bigotry, the hate, the racism.

I have asked myself many times in life Am I White enough (or Asian enough)?

Generally it would be right before meeting a girlfriend’s parents.  You see, I understood that both my parents’ and my grandparents’ generation came from a time when there was still great social unrest.  When I was born in 1969 the Civil Rights’ Movement was in high gear; World War II had ended just 25 years earlier.  Information traveled much more slowly then and so did change.  My American grandfather (a Captain in World War II) forbade my father from coming home to Florida with his Japanese wife.  My dad, ever the progressive called him after I was born and said, “I’m coming home with my wife and your first grandson.”  When confronted with the reality of his adorable grandson, the barriers fell somewhat.  Still, as a young adult, I was always conscious of the fact that the members of the generations that came before me may not be as accepting of a mixed-race person as those of my generation, and presumably those that came after.

Until recently, I have never asked myself if I was White enough to be considered a real American; but then there was the San Antonio Mariachi Kid thing

de la Cruz

de la Cruz (click on the picture)

followed by the MLB All-Star Game Marc Anthony thing

Anthony – click on the picture

and I had to start to wonder…am I White enough to be considered American?  Would White and Black America light up Twitter with words of hate if I sang the National Anthem for a game (assuming I could actually sing)?  Did White and Black America wonder  “who is that Nip throwing out a first pitch at Fenway?” when I threw out the first pitch at a Red Sox game a few years back? 

Did anyone ask, "who is that foreigner up there?"

Did anyone ask, “who is that foreigner up there?”

Did they ask,  “What has ‘Merica’s game come to?”  

Yeah…click on the picture of de la Cruz to see the nasty tweets sent his way.  They are not just from White America.

Both Sebastion de la Cruz and Marc Anthony are American citizens.  They were BORN here in these supposedly United States; and yet these “real Americans” tweet away, calling them all kinds of awful names.  I was NOT born here, but because my father is an American, I was deemed a citizen of the United States of America the moment I was born.  I have been a proud American since the moment I drew in my first breath of air and that pride had never and still has not wavered…but I am only 46.875% White.

And now I wonder…am I White enough?

I am HAPA

I’ve been watching the post-Trayvon Martin/George Zimmerman verdict drama unfold over the last few days.  I’ve seen much of the African-American community absolutely flabbergasted that Zimmerman could be found innocent. I’ve seen much of the White community screaming and yelling that this trial was not about race, but about self-defense.  I’ve seen posts on Facebook and Twitter and other social media supporting either Martin’s family or Zimmerman; demonizing one or the other.

If it weren’t so tragic; if a young man hadn’t lost his life; if another man hadn’t ruined his own life; if the underlying current of racism that still exists in this country wasn’t so clumsily exposed, I would find it all almost amusing – the media seems to.

I am not Trayvon Martin.

Nor am I George Zimmerman.

I am not African-American.

I am not White.

Nor am I Asian or Native American.

I have never had the privilege and comfort that White (Hispanic or otherwise), African-American or any other racial communities have long taken for granted – a true sense of community, of belonging, of “us”; one that goes to the very core of their being, of their identity.

I am a HAPA.  You see, I am half-Japanese.  My other half is mostly white with a sprinkling of Native American for good measure.  I am both White and Asian, yet I am neither.  I went to preschool, kindergarten and first grade in Japan – where I wasn’t nearly Japanese enough to be truly embraced into the culture or accepted by my peers.  I finished my schooling in Miami and Seattle, where I wasn’t quite White enough to be part of that ethnic group either; again never truly fitting in with any of my peers.

All of my life I have never quite fit in to any group…except well, maybe my fraternity in college (we were truly the island of beer drinking misfit toys) but that is neither an ethnic nor racial group.

I’ve watched both Whites and African-Americans dig in their heels, point fingers, lay blame.  If Zimmerman hadn’t… If Martin hadn’t… If only Zimmerman had… If only Martin had…

I’ve engaged some of the folks on both sides regarding the verdict.  Nobody wants to listen to what the other has to say.  They don’t want to know what they don’t know; they don’t want to understand what they don’t understand.  They didn’t grow up in each other’s communities.  They can’t possibly know the unfounded fear that each has of the other.

Now don’t get me wrong.  A significant majority of my non African American friends seem to have fallen on the Trayvon Martin side of the argument, but even they seem unable to grasp what it means to be Black in America.

Jess recently wrote about finally understanding what a African American mother must goes through every time she sends her babies out into the world – the fear, the worry.  I was somewhat surprised, in part, because growing up I felt like I was that baby no matter where I went.  It didn’t matter if I was riding my bike through a White neighborhood, a Black neighborhood, a Latino one or an Asian one…no matter where I went, I was a stranger, I was different and therefore drew some underlying suspicion.  The parents of the girls I dated were more often than not slightly uncomfortable at first, in part because they just were not sure “who” or “what” I was.  Although I embraced the fact that I was half-Asian and half-White, publicly stating that I had the best of both worlds, internally I was constantly at sea, knowing that my ship could never dock permanently anywhere.

Ultimately though, I think my racial ambiguity has helped me develop the people skills I have to today.  I was forced to figure out a way to connect with people without the luxury of either the unspoken racial connection I witness when two people of the same race meet or the racial recognition one has for someone of a distinctly different race.

My lack of race I think enables me to see the casual racism by both Whites and African Americans (and Asians for that matter) that others don’t see in themselves.  This case exposed what still exists in this country – racial tensions that bubble beneath the surface, just low enough in some places that many people have learned or chosen to ignore it.  We’ve come a long way in 60 years.  We still have a long way to go.

My hope is that, as I have had to do all my life out of necessity,  people will try to at least imagine walking in the shoes of someone who did not grow up in the same environment as themselves – imagine what it must be like when others assume you are a criminal; imagine what it is like when others assume you are a racist; imagine what it is like when others assume you are taking advantage of the system; imagine what it is like when others assume you are privileged.

We are more similar to each other than different; we all want personal happiness, we all want to see our parents live long and our children thrive.  My hope is that people will recognize that these similarities should bond us together instead of letting our differences drive us apart.  I envy the connection that people have to those within their own race, but I am grateful that my lack of race, my lack of belonging, my lack of  “us”  has forced me to simply see people for who they are.

Me and a fellow Hapa - not quite White...not quite Asian

Me and a fellow Hapa – not quite White…not quite Asian

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