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Dear Friends,

As you know, last year I ran the New York City Marathon, wearing the Autism Speaks logo on my chest.  YOU got me there by helping me raise well over $3,500 before the race.  This year I have chosen to skip the marathon and focus solely on the Boston Walk for Autism.  There are several reasons for this (one being I can only run so many marathons before my legs give out), but suffice it to say that sometimes one must walk to be able to run again.

So why am I walking for Autism Speaks? Why am I asking you once again to help us meet our goals?  I could link you to a dozen blog posts both Jess and I have written about the scientific research that shows incredible promise, or how Autism Speaks continues to do incredible work in their Raising Awareness campaign, or I could tell you about a friend who was surprised at just how many people in her new school community didn’t know what autism was right here in our town, telling me that there is still a long way to go…

But for me, it always comes down to this ..

(and now I’m stealing my wife’s much more eloquent words)

To make a difference.

To ease the path for my girl and so many like her who struggle with autism’s challenges.

To help find answers.

To change lives.

That’s what I’m asking for today.

*

Because every child deserves the chance to push past the limits of his or her potential.

Because we ALL deserve a world in which these amazing people are full participants.

Because we still have so many more questions than answers. 

Because the answers change lives. 

Because given the right tools, there is nothing – NOTHING – that my baby can’t do. 

Because for the first time in my life, I have no choice but to ask for your help. 

Because we can’t do this alone. 

Please give what you can. 

Because every dollar makes a difference in the lives of children like mine. 

From the bottom of my heart,

Thank you.


I know these are tough times economically, so I ask you to give what you can, and if you can’t, and are so inclined, please pass this along.  The link below will take you to Jess’ fund raising page.  I’m asking you to donate to HER page and not mine because every dollar she raises will be matched by her company – EVERY DOLLAR! So for every dollar you donate to her, you are essentially helping us raise double that!

http://www.walknowforautismspeaks.org/faf/donorReg/donorPledge.asp?ievent=467486&supid=331351221

If, for whatever reason, the link takes you to the Walk’s splash page and asks you to look up a walker, please enter:

FIRST NAME: Jess

LAST NAME: diaryofamom

The link can be a little wonky.

Finally, as added incentive, if we can hit her goal by Walk Day (October 2nd), I will do this for my next marathon (to me, not the dog – Dear PETA, this picture is photoshopped.  I did not dye my dog for real).

Thank you for your continuing support.  I am already in your debt.

-Luau

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The Journey

[tweetmeme source=”luau” only_single=false http://www.URL.com]

Time flies quickly.

As we get older, unlike our legs, Time seems to pick up the pace.  On the inside I am much like the 18-year old boy I was some 23 years ago.  Where have those 23 years gone?  What have I done with those 23 years?  and why did I waste so much time?

At nearly 42, I can’t help but wonder, what have I done?  where is my mark?  will anybody remember Luau?

This, I think is typical for a man my age.  As we realize we have passed the midway point of our marathon of life, wondering if we have run the way we should have; knowing that even as we head for that ultimate finish line, there will be a Heartbreak Hill  or two we have to overcome along the way.

Growing up I always thought that I would be famous.  I had no idea what for.  I just knew it was coming…at some point.  The problem was just that though, I knew – and as any Sci-Fi fan will tell you, knowing what will happen in the future inevitably changes it.  That knowledge made me lazy, complacent.  Sure I studied my ass off in high school, but the truth is, after that, I simply waited.

And waited.

And waited.

Where did I fall off the path?  It was near the end of my senior year in high school.  I had been accepted into an Ivy League school, I was a lock as the Valedictorian of my high school, I was a member of every social group, from the nerds, to the jocks, from the burn outs to the BP’s – they all claimed me as their own; life was good.

I took my foot off of the accelerator and flipped on the proverbial cruise switch.

Looking back, I wonder if I ever turned the switch off.  To be sure, there were times when I took control of my world.  Most recently was just over a year ago when I decided that I had to qualify for Boston.  I spent the summer focused, running mile after mile with a singular purpose.

3 months later, I achieved my goal.  Needing a 3:20:59 to qualify for Boston 2011, I ran a 3:19:19.

Boston Qualifier – I felt like I had achieved something…something not a whole lot of people can claim.

But there was a problem.  I had thought that qualifying for Boston would somehow mystically change me, alter me, better me…but I was still just plain, old me.  I was still Luau, just 3 months older, a few pounds lighter.  On the inside I was still Luau the 18-year old kid, waiting for fame to shine its light upon me.

I know now that it’s not coming…at least, not until I grab it by the horns and wrestle it down.

***

These last few months have been difficult for me as a runner.  My motivation has come and gone like the breeze pushing fallen leaves on a cool autumn day.  With only days until the Vermont 50, I will admit that I have done almost no training – zippo, zilch, nada!  I jokingly said to someone recently that I had been tapering since Boston – I was only half-joking.  This journey is going to be a test of mental toughness, of determination, of focus.  I am both scared and not scared simultaneously.  There is a part of me the simply knows I have it within me to cover 50 miles in 12 hours. Simple math tells me that as long as I keep moving, I will be fine.  And for the first time in my short racing life, I don’t care about where or how fast I finish (other than not to get physically removed off of the course by the sweepers).

But part of me is terrified.  What if I am mentally weak? 

Am I?

What if my mind gives up before my body does? 

Will it?

What if I discover that I peaked at the age of 18? 

Did I?

***

This “race” on Sunday will be interesting to say the least.  My hope is that I can prove to myself once again, that I am strong, I am determined, but mostly, that I can be disciplined.  Maybe I can rediscover who I was.  Then, it will be a matter of bringing those traits back into my every day life and then hopefully, full circle back to my running.

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The Rings of 9/11

I went out this morning for a run.  I set out to run 9.11 miles in memory of those who will never run again.  As my run developed, I decided to stop at every mile for a brief moment of silence to think of those that lost their lives and to slow my overall pace down to 9:11 per mile.  It was a beautiful morning, not a cloud in the sky – much like that fateful day 10 years ago.

In the end, I hit it right on the nose, 9.11 miles, 1:23:43 for an overall pace of 9:11.

***

During one of my moments of silence, I thought of the City of New York, the people that live, work, and love there.

I thought of my sister.  She is one of those people that has worked and lived in New York for almost half of her life.  As I thought of her, I remember something she described to me not too long after that horrific day.  She described what she called the Rings of 9/11 – the layers of people who were affected by the acts of those evil men.

We all know of the 3,000 lives that were lost that day.  But what of the rest of us?  Everybody in this country was affected by the events of 9/11, but the truth is, the closer one was to Ground Zero, she believed, the more traumatic the event was.  There are exceptions to be sure, but for the most part, I have to agree with her.

***

So today, as we honor those that lost their lives 10 years ago, each in our own way, maybe we should all take a moment to check in on those whom we love and were not too far from the epicenter.  I will be thinking of all of my friends who still live there, but today, I think I will call my sister.

Who will you call or reach out to?

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[tweetmeme source=”luau” only_single=false http://www.URL.com]

I used to work in a sector of the Event Planning business called Destination Management.  I was actually the Chief Operations Officer of what was the premiere company in New York City for that particular niche. Essentially, if you were a company that wanted to send a group of people to New York City for a stretch of time, we took care of those people from the moment they got off of their planes until the moment they got back on.  We took care of transportation, lodging, food, entertainment, tours and most importantly to some of these companies, meetings and conferences.

If a company was sending a group of its people to New York City, they had to throw in a few meetings.

New York City has an incredible number of venues to choose from when picking a place to hold business meetings, presentations or conferences.  As the man in charge of the various programs we put together, I thoroughly enjoyed being able to get into these venues before, during and after each of the events I ran.

Despite the endless options however, there were a select few places that were my “go to” locations.  Places where I felt comfortable enough with the staff to know that even if my event hit a glitch or two, the end result would still be a success and would receive glowing reviews.

These select places became regular locations for me – places where I would run breakfast meetings on a weekly (usually twice a week) basis – to the point where I could simply rely on the routine and know that “today” was going to start off well.  These breakfasts would generally last from about 8AM to 10AM, requiring me to be present from about 7AM to 11AM.

One of these places was Windows On The World.

Windows on the World was a complex of venues at the top floors (106th and 107th) of the North Tower of the World Trade Center in Lower Manhattan.

Just a few months before the attacks of 9/11, Jess and I decided that we wanted to have one of us at home raising our child.  We looked at our respective salaries at the time and decided that it would make more financial sense for me to be the stay at home parent.  The next week I went into my boss’s office and told him that I was “retiring” for a while to raise my child.  Although he was disappointed, he completely understood and accepted my decision.  He understood why we had made our decision and did not try to convince me to stay on.  Tony could be a convincing guy, and I am thankful that he let me go.

***

On the morning of 9/11, little Katie was in her high chair.  We had just started on solid foods (if you can call soupy cereal solid).  We had recently moved out of New York City and into the suburbs.

The phone rang.  It was Jess.

What are you doing? she asked.

Feeding the kiddo.  Mmmm, cerrrrrrealllllll.

You need to turn on the TV.

I strolled the high chair into the den and turned on the television.  There was an image of smoke coming out of one of the Twin Towers.  The voice on the TV was talking about a possible Cessna crashing in the building.  I remember thinking, what an idiot!

And then reality changed.  The second plane hit the other tower and my world, my baby’s world, our world was changed forever.

***

As ten years have passed, certain feelings have become fuzzy.  The abject disbelief and horror of what those 19 evil men did has been numbed somewhat.  My fear of flying has become a little less terrifying.  The wound on my National Pride has healed, if not scarred.

But…

…every time I think of 9/11 and I look at my now two children, I think about the fact that there are so many children , so many sons and daughters, so many parents and siblings that lost someone that day, and had I still been working at the time, there was at least a 40% chance that I would have been up there, at Windows On The World, when flight 11 struck the North Tower.

Fortunately for those in my former company, we did not have a program there that day.  That doesn’t mean I wouldn’t have had I still been with the company.  Like I said, Windows was a preferred venue of mine.

***

So as we enter this weekend commemorating the 10 year anniversary of the awful events that happened on 9/11, I ask you to pray for those that lost their lives that day – but I also ask you to say a prayer for the children, the parents, the spouses and the friends of those who lost their lives, and finally for those who were never born…had I been there, Katie would have been an only child, Jess would have been left alone…and Brooke would have never been born.

I am so thankful, so grateful, that whatever God that is up there decided that Brooke needed to be a part of this world.

Thank you Lord for sparing me, but even more so, thank you for sparing my baby…

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[tweetmeme source=”luau” only_single=false http://www.URL.com]

Hey! What are you doing?!?

Silly, what are you doing?

***

Can you read the difference?

My older daughter, Katie, has been struggling for some time now with many of the quirks that come with Brooke’s autism.

Brooke likes to script things, and though we work very hard to move her away from them, we know that they are a comfort for her when she is either anxious or going through an unstructured period (i.e. school breaks).

Katie will very often play along with the scripts…that is, she will play along until she won’t play along. And when she is done, she is DONE!

And that’s when it happens.

Brooke tries to start a script with Katie, Katie snaps and all Hell breaks loose.

I’ve been trying to arm Katie with a few deflective tools that can help her – one of which is simply changing the tone in her voice while still getting the message across that she doesn’t want to play anymore.

Same message, just slightly reframed.

***

A friend of mine on twitter recently asked if she could “just run away?”

I answered that it depended on whether she was fast enough to outrun whatever it was she wanted to run away from.

***

Some people do run to “get away” from their problems.

I can understand that. I am sure I have been guilty of doing it on several occasions. But I like to think that running as therapy actually takes a different approach.

Much like I am trying to teach Katie that stopping and then reframing can make a huge difference, I believe running can do the same thing.

If there is something troubling you or you have a problem that you just can’t seem to wrap your brain around, there is a good chance that a nice long run can help you find the solution.  Notice that I didn’t say that running is the solution or that running will give you the solution.  Rather, I think that running gives you the uninterrupted time for your brain to roll over a problem in a less stressful environment.

Sure you’re breathing hard.

Sure you’re sweating a ton.

Sure you’re possibly focused solely on how much your quads and calves hurt.

But while all of that is happening, you’re brain is working, and possibly, quite possibly, you come home with a slightly different view of your problem.  It might not even be a different perspective, just simply a change in tone or vocabulary.

Same problem, same solution – simply reframed.

***

Try it.  90 – 120 minutes of heavy sweating – running, biking, swimming…or however you get your sweat on.

And in the end, even if you don’t find the find your way to the solution of your problem, at least you will have got in a great workout!

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Why do you run?

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[tweetmeme source=”luau” only_single=false http://www.URL.com]

I have a friend.   I have only met him in the real world once.  He was a large part of why I was able to qualify for Boston back in October of last year – we carried each other for 15 miles.  On that day he missed qualifying for Boston by seconds.  As joyful as my day was, it was devastating to see him just miss his goal.

Instead of folding up his tent and going home, my friend doubled-down and trained even harder for his next marathon, which took place in May in Pittsburgh.  His training was epic to say the least.  To put it in perspective, I just passed 1200 running miles for 2011  last night.  As of 9 days ago, my friend had logged nearly 1800 miles.

1800 miles!!!

He was a man possessed, and when he crossed the finish line in May, he WAS a Boston Qualifier.

I know the feeling – the joy, the wave of emotion, the satisfaction…the “what now?”

Huh?

That’s right.   I recently read in his final post on dailymile that he was “taking a break” from the social network to find his passion for running again.  Boy, do I know that feeling.   I was fortunate enough to have the New York City Marathon line up just 5 weeks after my BQ and then Boston 2011 5 months after that to keep me focused on my training, but after Boston I simply lost “it”.

I was rudderless.  I tried to re-focus my energy by signing up for another marathon, but in the end, I just didn’t have the same drive I had had when I was focused on qualifying for Boston.

Truth be told, I am still wandering, attempting to kick start myself again and again, but I do see signs of my focus coming back.  It’s taken my 4 months, but it’s starting to come together again.

I hope my friend doesn’t stay away too long.

His departure will send ripples throughout the dailymile community and will be felt by all.  He always had an inspirational word for his friends and his workouts were worth emulating.

***

I hope you find your passion again Brendan.  You are an inspiration to many and proof that hard work pays off.  You motivated people not by your words but by your actions.  Enjoy your break – I hope to see you on the ‘mile in October when we both start training again for Boston 2012.

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Why do you run?

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Birthday Wishes

 

[tweetmeme source=”luau” only_single=false http://www.URL.com]

Today is Jess’ “29th” birthday.

I wish I could give her everything that she could possibly want.

She actually put a list together.

Check it out

—>>>HERE<<<—

My hope is that you can help me with the last item on her list – though if you want to give her the first item, I won’t argue or say no.

Happy Birthday Babe!

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Why do you run?

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[tweetmeme source=”luau” only_single=false http://www.URL.com]

When I tell people about running marathons, almost universally the response I get is, “I could never do that”.  My answer always is that just about anyone can run a marathon.  All you have to do is try, let go of preconceived notions about yourself and try on my running shoes.  Spend a week, a month, a year in my running shoes, widen your perspective and you will be hooked.  Just because you don’t understand it or don’t get it doesn’t mean it’s bad or not for you.

***

Reading through a friend’s facebook feed the other day I came across a post regarding the movie The Change Up.  There is a movement among some to boycott the movie because one character refers to another’s twin boy by asking if they are retarded.  When the father responds no, the friend asks, “are you sure, this one looks a bit downsy.”

I’m not going to go into the fact that the humor is on the offensive side of the fence and, in my humble opinion, unimaginative.  Anybody who reads this blog or my wife’s blog regularly knows where we stand on the word “retarded” and its use as either humor or insult.  The same goes for using those with Down’s Syndrome in a similar manner.

What got to me was the response of a particular fellow who snapped back at my friend with the following comments:

Isn’t this taking political correctness to an extreme? What would be acceptable, “what, are they hindered? Are you sure[?] this one looks a little suppressed”. Then after a month we couldnt [sic] use the H word right? cut the shit.

Somebody responded:

wow… cut the shit? tell you what, let’s make YOUR kid ‘retarded’ for a week. after, you can let me know how you feel about the world using him/her as a laughing point, k? better yet- why don’t YOU cut the shit. *disgusted*

To which he said:

First of all, I’ve done more direct volunteer work with “Retarded” children and adults in my lifetime than you could do in three lifetimes. I’ve done so since I was a child with my Mother. so that alone gives me my right to an opinion. I personally worked every Pat’s home game for two seasons at a concession stand at Gillette with every penny going to down syndrome. My point is it’s one thing to say directly a person with down syndrome “what are you retarded?’ that’s ignorant. But to reference the condition as Retarded or “downsey”. Is harmless in my eyes. there is a difference between “Special needs” and Down syndrome or retarded. Retarded is a gentle dictionary term for someone who is hindered from functioning in the same capacity as someone who is not “Retarded. Retarded WAS the kinder and gentler term as opposed to Mongoloid or even as they were scientifically referred to in the 1920 as idiots. I’m just tired of all this cock and bull false sensitivity you tree huggers throw out there to make you feel better about your own pitiful lives and I wonder when enough is enough.

As for those of you who have been blessed with a special child, you know as well as i do, your lucky ones and god’s chosen ones. You should also know that any of those children only want to be treated like anyone else. that’s includes joking teasing and loving. they don’t need to be shielded and understand more than most would give them credit. [To another commenter], I’d take a walk in your shoes any day and love it. My contribution was not years ago, it’s been off and on my whole life. I thoroughly enjoyed watching people look at me in horror being my usual “off color” self with my buddies and then laughing their collective asses off when they would all conspire to pelt me Mozzerella cheese balls from the pizzas we were making at Gillette. And guess who got all the hugs at the end of the day. that’s right this guy. I’m just saying lighten the fuck up. being ignorant does not make you a bad person, it just makes you ignorant. One without knowledge. You don’t have to change the fucking words, change some minds. Do you think your going to reach someone by scolding them for using the only words for it they know?

Educate. Don’t further isolate your kids by Trying to make others feel bad when I’m sure their intention weren’t. This society is over sensitized and overly pussified.
Next thing you know we will be electing a Special Needs president to compensate for our years of ignorance.
(yes i know that one was bad. I just had to get an Obama dig in here)

This was my response:

I think you are melding two issues. I agree with you that this Nation has become weak due in large part to this “everybody wins” attitude. If everybody wins all the time, nobody wins…however, we’re talking in part about a group of people who to a large degree cannot defend themselves, and when you are talking about certain subsets of that community, parents who are also unable to deftly defend their children. I am ALL for good natured teasing…particularly about things we can change, but let’s not make fun of a person because they were born with an extra chromosome or have a brain disorder…it just ain’t funny…

flatulence…now that’s funny!

So here’s the thing.  This guy firmly believes what he is saying (writing) – he really believes that he has done “more direct volunteer work with ‘Retarded’ children and adult in [his] lifetime than [the respondent – a parent of a Special Needs Child] could do in three lifetimes.”  He really believes that we [special needs parents] are all tree huggers who throw out “cock and bull” to make ourselves feel better about our own pitiful lives, and yet turns around to say that those of you who have been blessed with a special child, you know as well as i do, your lucky ones and god’s chosen ones.”  For him to then say “You should also know that any of those children only want to be treated like anyone else. that’s includes joking teasing and loving. they don’t need to be shielded and understand more than most would give them credit.” just goes to show that he doesn’t understand that sure we all want to be teased a little, but only if we are able to dish it back.  Teasing is good when it is a back and forth, not a one way street.

This guy here, this guy is why I continue to work for awareness, why I continue to run with my Autism Speaks pin, why I sometimes tell people that until you have walked in the shoes of a Special Needs parent, you cannot know what it is that they go through, what it is that pains them, what it is that scares the living daylights out of them and keeps them up all night.

The commenter said that he would walk in my friend’s “shoes any day and would love it.”  How about walking in the shoes of a parent whose kids have been wiping their shit on the wall for the past 18 years?  Tell me you’ll love it then.  Obviously he doesn’t get it.  I hope someday he may take a walk in our shoes, not just for the workday, not just for 24 hours, not just for a week.  I hope that he is given the opportunity to truly understand what it is we go through on a LIFETIME basis.  There is no end of the week, month or year for us.

Do I think we need to lighten up sometimes? Sure.  Sometimes we get trapped in our own storms and cannot find our way out.  Do we need to be able to laugh at ourselves? Absolutely.  Do our kids (and adult like them) need to learn to do the same?  Totally.

But there has to be a better way to do that instead of making these kids punchlines that will carry far beyond the movie theater.  What the commenter fails to understand is that once people see that it is acceptable to make a joke about “retarded and downsey” people in the theater, they will take it with them to their workplace, their playground, their community, at which point what was originally meant as harmless humor (and I don’t doubt that the writers of the screenplay meant it as harmless) ends up getting used in spiteful, mean-spirited, cruel ways that can cause much greater long term harm.

Honestly, I may still go see the movie.  Tropic Thunder had a similar issue, and quite honestly, that moment aside, I thought it was hilarious.  I just hope that people will think twice about laughing at the expense of someone for just being.  Laugh at the funny faces runners make at the end of a race, laugh at the fact that I almost pooped my pants in my last marathon, laugh at someone’s politics, be comfortable enough to laugh at yourself (said the skinny kid with the huge melon – yeah, that’s me).  Heck, laugh at public figures for saying ridiculous things, but don’t make fun of our kids just because they have autism or down’s syndrome or any other debilitating disease.

Quite frankly, that’s lazy and weak.  Maybe the commenter will be “blessed with a special child [and find that he is one of the] lucky ones and god’s chosen ones.”  I wonder if he will still feel that way when 10 years later he still hasn’t heard his child speak a single word, or a simple “I love you” or received a single hug.

Truth be told, I hope for his sake, and for the sake of that child, he doesn’t – I don’t think he has the feet to fill our shoes.

***

By the way, there is a tree hugger in our family.  It is little Brooke, who literally goes up to trees and hugs them.

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[tweetmeme source=”luau” only_single=false http://www.URL.com]

Tonight I am running a marathon.

No, literally, I am running the Around the Lake Marathon tonight, starting at 7PM. If you are in the Wakefield, MA area this evening, please feel free to come out and cheer.

I have never in the last 21 month of marathon running felt more unprepared.

How unprepared am I? Let’s go by the numbers:

If I had stuck with my 12 (week)/70 (mile peak)  plan, these are the weekly miles I would have run:

55/59/62/66/59/70/70/64/70/57/44/28 for a grand total of 704 miles of training.

If I had stuck with my fall back 12/55 plan, these are the weekly miles I would have run:

35/39/43/48/42/48/55/49/52/43/32/22 for a total of 508 miles.

***   ***   ***

Here are the actual miles I ran:

54/51/47/42/30/7/32/32/15/30/28/4 for the mighty sum of 372 miles.

Not pretty is it.  That’s close to only half of what I originally planned on running.  In addition, you’ll notice the downward trend in mileage over the last, well, um, during the entire training cycle.  I had some motivational issues to be sure, but there were some weeks marred by either injury or life simply getting in the way (it happens).  Still, I have never felt so unprepared for a 26.2 miles race.  Even in my first marathon I had the advantage of not knowing what it was I was getting into.

But you want to know something funny? I’m ok. In fact, I feel at peace with the fact that I am way undertrained for this race. There’s no reason really.  Maybe it’s the fact that this is my 7th marathon in 21 month, maybe it’s that I feel somewhat rested (though heavier with the lack of miles), maybe it’s that I’ve set my Garmin to beep if I start going too fast (avoiding the debacle of Boston 2011), or maybe it’s just the cumulative effect of repeated endorphin highs…I don’t know.

Am I worried? A little to be sure.  But I don’t have the nervousness I’ve had before every other marathon (who am I kidding, before every other race!!!), that awesome/awful feeling in the pit of my stomach.

What will happen tonight?

I don’t know.

All I know is I’m running a marathon, I’m totally unprepared, and I’m totally fine with that.

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Why do you run?

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[tweetmeme source=”luau” only_single=false http://www.URL.com]

“On behalf of every man
Looking out for every girl
You are the guide and the weight of the world
So fathers, be good to your daughters
Daughter will love like you do…”

-Daughters by John Mayer

Last night I had the privilege of speaking at the Greater Boston Autism Speaks Walk Kick Off Party. I have to admit that I was a little nervous, in part because anybody who had been to the Event a few years ago would remember Jess’ absolutely amazing, ovation-inducing keynote speech. I was asked how my worlds as a runner, a father and a person touched by autism interconnected. What follows is a video of my speech (thank you Jess for recording it), a transcript of the speech, and a few “thank you’s”. You can tell my public speaking skills are a little rusty (I hadn’t given a speech since my PTO President days), but I think I got my point across.

Good Evening.

Some of you may know me through my wife’s blog, A Diary of a Mom, as Luau.

I am a father of two beautiful girls, one of whom has autism.

I am also a believer that awareness is the key to understanding which in turn leads to acceptance – I firmly believe that if I can sit down with anyone and talk with them about autism and how it affects my little girl’s interactions with the world, I can erase one more disapproving face, one more thoughtless comment, one more snicker from the world – as parents, these are things we have all experienced at the playground or the grocery store or the mall.

Those “know-it-all” parents who look at you and say, “I would never let my child do that”. – They are a big part of why I do what I do.

But what is it that I do?

Well, I run.

And I write about running.

And you’re right – that should have nothing to do with autism; but as I am sure many of you know, when you have a child with autism, it becomes a part of everything you do.

When I write about running, I often find myself drawing parallels to the challenges, the trials & tribulations, and of course the victories of living with a child who has autism. As my audience has grown, so has the number of men and women who have now developed a sense of compassion for our families. I hope that as time goes by, more people like me, specifically dads who just aren’t sure how to make an impact, will find their own voice, their own way of contributing to the conversation, whether it be through running, talking to other parents while coaching Little League, or sitting around a poker table – ultimately raising awareness.

Now don’t get me wrong. Awareness, understanding and acceptance are not the goals – they are the vital first steps on the journey toward the goals. This is one of the many reasons why I work so hard to raise funds for Autism Speaks.

Autism Speaks understands that there isn’t just one solution to the challenges faced every day by people with autism and those who love them. And so while Autism Speaks works hard to raise awareness, they are also tirelessly working to unravel the mysteries of this epidemic using a reasoned, scientific approach, pushing for good, solid science to eventually answer the myriad and endless questions we have.

As men we are wired to “fix” things. As fathers we are wired to protect our children. This is our nature. But autism is neither something that can be fixed nor something we can protect our children from – instead it is messy, complicated, hard, frustrating. And so as fathers we lose faith in ourselves.

But I am here to tell you tonight, no matter how lost you may feel, no matter how overwhelmed by the process you may be, there IS a way that you can help, there IS a way that you can make an impact, not only for your child but for all of our children.

You walk. And as you talk to your friends sitting around the poker table, to the parents at the little league game, and to your co-workers about why you are walking, I bet you get to see judgement replaced by compassion and ignorance with understanding.

The first time I ran the Boston Marathon, my wife handed my an Autism Speaks pin to wear during the race. Her message was that if our little girl could fight each and every day to interact with the world around her, then dammit, I could drag my butt up Heartbreak Hill even with my legs failing me. And when they did – I put my right hand over my heart where I was wearing the pin – I made it past Heartbreak Hill and finished with a Personal Record of nearly 25 minutes.

I now wear this pin to every road race I participate in. This simple token does two things:

  1. It gives me strength when my legs start to tire.
  2. It starts a conversation and helps me pull more people into my community of understanding.

I run, I write, I talk, and I walk for Autism Speaks because to quote one of my newest heroes, Autism Speaks’ Chief Science Officer, Geri Dawson, I want “A world in which suffering because of autism no longer exists.”

Several weeks ago, I had the privilege of listening to Dr. Dawson speak about the latest scientific breakthroughs and ongoing research initiatives that are being funded by events like this. During her talk she gave me something I had been struggling to find in the preceding weeks. We were having a particularly hard time and had let our fears for our baby’s future grab hold of us. But on the night that Dr. Dawson spoke, she gave me, us, the gift of hope.

The hope that “A world in which suffering because of autism no longer exists.” is possible.

“A world in which suffering because of autism no longer exists”

That is not only Autism Speaks’ mission statement, but also mine – not just for the sake of this dad’s little girl, but for all of our loved ones who live with autism every day.

Thank you for being here. Thank you for listening. Thank you for helping to make the world a better place for my little girl.

***

I would like to thank Jess for helping me turn my crude rough draft into a polished piece; Kelley Borer for inviting me to speak (I was convinced she was asking the wrong member of our family at first); Autism Speaks for helping make the future brighter; Randy Price for continuing to be a fixture at every Kick Off event and walk; and last but certainly not least the amazing people of the Teamsters Local 25, who have raised nearly $1,000,000.00 for Autism Speaks – Sean, Trish and Tom, you are Heroes in my book.

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