I often talk about how a race can be a metaphor for life in general – the highs, the lows, the laughter, the tears. I often draw parallels between the difficulty I face during a marathon and the difficulties Brooke faces on a daily basis – the conclusion always being that if Brooke can fight through her day, every day, on a lifetime journey, then I can suck it up for three and a half hours over the course of 26.2 miles.
But Boston 13.1 brought a new metaphor to light for me. As I hope most of you know by now, Jess tackled Boston 13.1 on Sunday as well. She ran/walked it. You can read her recap on her blog. I could not be more proud of her. She did it on absolutely no training whatsoever. We had a little talk about it the other night – she said she felt like a fraud because she thought all of the “You Did IT!” praise was misplaced, comparing herself to someone getting through a workday with a hangover – self-inflicted difficulty.
But I saw it a different way.
Here’s the thing – Jess handled Boston 13.1 the same way she has taken on life as the parent of an autistic child; she did it with grace and a sense of humor. When a lot of people would have packed it in (and the organizers of the race were literally packing it in as she passed mile marker 12), she kept going, and this is where the metaphor comes in. When we, as parents of autistic children, find out that we are on a different path, we discover that we are not trained for the unique position we find ourselves in.
Much like Jess felt toeing the line on Sunday, we can feel overwhelmed, undertrained, and all alone when we first hear our child’s diagnosis. But if we have the courage to cross that starting line, to move forward, and we manage to keep our sense of humor about us, we discover that we are, in fact, NOT alone; that there are so many others who are running the same race with as little training.
Is it a harder path? Sure. You will never convince me that being the parent of an autistic child is just as easy as being the parent of a neuro-typical kid. BUT, are there at first unseen blessings along the way? Absolutely. I would argue that Brooke has made me a better father to my kids, a better husband to my wife, and a better friend to my friends than I would have been had I not suddenly found myself on this path.
The number of Team Up singlets on Sunday was both encouraging and disheartening. I would never wish the harder path in life on anyone, but it was so heart-warming to know we were all there together. And just because the path is harder, doesn’t mean that the path is impossible.
My wife proved that yet again on Sunday – it says so right on the picture.
So proud of you, babe!
Run Luau Run 
I’ll say it once again… She is AWESOME! You both are. I’m so blessed to have your family in my life!
When I found the writing that you and your wife have provided in this blogging world that was the moment I knew we were not alone on this journey…..and we had felt alone for a very long time. When I got to see both of you at this half marathon this weekend I knew just how blessed we are to be on this path with parents like both of you. You both make my heart smile.
What they both said. The two of you inspire me every day. Seeing you both cross that finish line together was an incredible moment for me and for my boys.
Awesome. I can tell you that I turned to running soon after Liam’s diagnosis came. It took a while since the diagnosis was given the same month I had given birth to his little sister. Once I made the decision to get started there was no turning back- both in learning to parent my son in a better way and in hitting running milestones I had set for myself. They very much went hand in hand. I posted a note on DM the day after the Boston 13.1.
“At some point I transitioned from running FROM things and began running toward them. Yesterday was a day that I just felt joy in running to run. I felt pride in a race that had me wearing a shirt telling the world I love my boy for exactly who he is. I felt emotional release in the final 5k as I saw families cheering for runners that felt the SAME way about their loved ones with ASD and I felt strong mentally and physically. I wasn’t running from stress or from reality – I was running toward my goal of joy and acceptance. I believe that is the best fuel these legs have ever had.”
thanks again for being such a big part of this inspiring and emotional day for me and for so many.
Inspiring for both the running and the parenting. A great metaphor and I love that the only two blogs I follow are in the same family. You are provind yet more motivation for me to join up next year.
You guys are awe inspiring. Not just you and Jess but your beautiful girls. And Jess so deserved every pat on the back,every word of praise we gave her.
I know it’s not a competition, but if I had to choose between your category of “under trained” and hers which was (I think) “people do this on purpose?” it would be difficult to pick a winner. I think she deserves all the “Way to go’s” — and I agree, much of the experience must parallel/represent much of your journey as parents in general, and especially as parents of a child with autism. I continue to be inspired and awed at the support that flows so freely among everyone involved……..